It is April 2016 and we are still on this dementia journey with my dear mother-in-law. This is a pain filled disease emotionally. To wake up in the morning and not recognize your home of 30 + years, to call out for your husband who has been gone for 12 years, to ask whether your mom is looking for you, to not really have the ability to dress yourself, and to ask, “when am I going home?” every day, HORRID! It is painful for her and painful to watch a perfectly capable woman turn into someone who relies on others for everything while maintaining the thoughts that she IS doing it all. It is difficult to keep up with the little “lies” you need to tell to keep the peace.
I am not going to kid anyone, we are not great at this caregiving. We get frustrated and a bit to happy when bedtime arrives. We are jumping for joy on the days we have an aide come in. That being said, we are doing the best that we can. And, some days, we do even better!!